Friday, January 29, 2010

Being tired

my 12 yr old daughter had GBS in early Feb 07. She was VERY exhausted all the time for about the first 4 months or so. Gradually (and slowly) the exhaustion lessened and she could do more without feeling totally wiped out for days. Now (10.5 months out) she is at about 90% of normal and still improving. She is in school full days and doing well.

Everybody is different, but just know that eventually you too will get better. It may happen so slowly that you don't notice that you are improving. But I kept a diary about my daughter's progress and would often point out how much more she could do than a month or two or six months ago. That can help. It gets discouraging to feel so tired or to feel like you aren't getting any better.

As everyone will tell you, rest is important. Are you able to go to school or are you at home?

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